We went to the cardiologist Tuesday for Susannah's checkup and it turned out to just be a weight check! Yay for that!! When they do an ECHO it's usually about a three hour appointment, so it was a pleasant surprise that the Dr. decided not to do one. She gained about 10 ounces from her last appointment which was 4 weeks ago. He said he wasn't thrilled with her weight gain, but he was okay with it. :) He told me he was prepared to march in and refer us to a GI doctor to discuss other calorie options or feeding tube options, but since she gained well and stayed on a curve upward, it would be my warning (he didn't call it that) for next time. So, if she doesn't gain well between this appointment and next, then next time he'll refer us to a GI doctor. I've pushed back a bit every time he's mentioned feeding tubes. He knows I don't want to go that route. She's just such a happy, healthy little girl that takes everything by mouth, as much as she wants, without tiring out, I just don't see how a feeding tube would be beneficial at this point. I could understand it if she still wasn't gaining weight, lethargic, didn't have the energy to eat, or tiring out while eating, whatever, but she's not like that at all, so to me it seems as if that would be regressing. He seemed to understand where I was coming from along those lines of thinking, and he said they would sometimes do continuous overnight feeds, which I was aware of, but she's been getting up once or twice a night and eating, so even doing that seems unnecessary, in my opinion. Susannah's been gaining on an upward curve since her surgery, so I really think as long as her heart stays like it is and doesn't get any worse right now, she should continue to gain. At least that's what makes sense to me. Please continue praying that she will continue gaining. We mix the formula with quite a bit extra for the increased calories (per dr.'s orders) and she's been eating regular food fairly well. She's never been a big eater, but she also has a lot of distractions. :) He also increased her medications a tiny bit. We don't go back for FOUR MORE WEEKS!!!! YAY!!!!
(Also, if anyone has questions, or if something I wrote doesn't make sense I don't mind clarifying)
9 months old
Her top tooth is coming in and since this picture was taken the second one has broken through.
Will continue praying. She is such a beauty!
ReplyDeleteI think their weight expectations are high. She looks like she's doing wonderfully.
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